I forgot how desperate I was!

I forgot how desperate I was! This time last year I was climbing a fairly steep hill, all in a desperate effort to meet you. I was 3 days overdue and really couldn't wait any longer to hold you in my arms. Little did I know I'd still be waiting a further 3 days! Even … Continue reading I forgot how desperate I was!

15 days!

Today marks the longest we have been home since November! 15 whole days and counting! Caleb had his first session with the local physiotherapy team today. They were very impressed at how well he was doing considering the battles he's faced lately. He's still got a long way to go but we'll get there at … Continue reading 15 days!

 “The hardest, worst, right choice”

  "The hardest, worst, right choice" https://www.mirror.co.uk/lifestyle/family/mum-reveals-impossible-choice-made-11953413?ICID=FB_mirror_main I know this will spark a lot of discussion. I have and always will be pro choice! I couldn't possibly say what might have happened if we had a prenatal diagnosis for Caleb. I can completely empathise with the family in this article. Nobody can ever say for … Continue reading  “The hardest, worst, right choice”

Video fluoroscopy

As you can see this wee dude took the Videofluoroscopy in his stride. He thought the place was hilarious 😂 The good news is we don't need a feeding tube  🎉 He is however a mystery to the team. This boy just doesn't do textbook. The short of it is that he is occasionally having … Continue reading Video fluoroscopy

Latest Hospital Update 

So sorry, it's been a while since I last posted properly. Things have been very busy and there have been big changes. Here is my latest vlog.  https://youtu.be/6-2etOg3uAU Thanks for watching xx #hospital #hospitallife #motherhood #family #bloggingmum #ukparentblog #realmum #instamum #instablog #vlog #vlogger #channelmum #ventilator #bipap #oxygen #sleepstudy #downsyndrome #dsblog #additionalneeds #keepingitreal

10 months old

This not so little guy is 10months old today!!! Not sure where the time has gone. He's much brighter and more like his old cheeky self today 😍 Having a detailed sleep study tonight and will make plans based on those results. #10monthsold #babymilestones #wherehasthetimegone #growingtoofast #bigboy #cheeky #downsyndrome #dsblog #trisomy21 #rockthe21 #rockingmum #theluckyfew #itsonlyanextrachromosome … Continue reading 10 months old