Caleb Update

20170922_153949Caleb update –

He started having mild spasms last night and again this morning.
I phoned and spoke with his consultant who said that the EEG had shown an improvement but still some activity.

Since he’s been off the steroids a week now this is a small relapse.
However he is only on half the max strength of the anti-epileptic medicine.

So the plan is to gradually increase that and hope it stops the spasms without wiping him out like last time.
Not sure if I could cope without his cheeky wee smile for days again!

Good news is that his MRI showed no abnormalities 🙂
Which is a HUGE relief!!

Thank you all again for your continued support 😍😍

#infantilespasms #UKIST #epilepsy #spasms #EEG #electroencephalogram #MRI #Magneticresonanceimaging #hospital #consultant #medicine #worried #poorbaby #poorlybaby #brain #stress #relapse #getwellsoon #fingerscrossed #downsyndrome #downsyndromawareness #teamt21 #rockthe21 #rockt21 #downsyndromebaby #myboy #bloggingmum #pblogging #ukparentblog #rockingmom #realmum

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